Three specialists in one week.

Tomorrow we go back in to see the orthopedic surgeon for Phoenix's first ever cerebral palsy clinic.  Its an hour long and that's about all I know.  No idea what it entails, but right after it we meet with the physitrist to talk about doing more botox.  His PT wrote a two paged letter detailing why it would be a good idea to go with another round.   We have actually had to cut back on his PT because during his sessions he just screams and works so hard that he doesn't want to do anything more.  We don't want to push him right now so we are going to just relax a little till his next botox treatments kick in.  He has his moments where he is happy as can be doing his therapies, then turns on a dime and is hysterical.  His sleeping is progressively getting worse as well.  He wakes up anywhere between 4:30 and 6am then around 10 goes down for a nap...and only takes a 45 minute nap and that's it till he falls asleep on me around 7pm.  It makes it really hard for me to do his therapies he is just really tired all the time.  He also only wants me, if I'm not sitting beside him physically touching him he has a panic attack and screams.  Monday we see the ENT so I'm praying that with these doctors appointments in the next two weeks we figure out something to help my little guy.  I want my happy non-clingy Phoenix back!



Playing kick ball




Daddy helping Phoenix out...he was giggling the whole time :)




:)