And be not conformed to this world: but be ye transformed by the renewing of your mind, that ye may prove what is that good, and acceptable, and perfect, will of God. ~Romans 12:2~







Tuesday, April 17, 2012

Mild obstructive sleep apnea

Finally got a call back from Phoenix's doctor and the sleep study showed that he has mild obstructive sleep apnea.  So I was right...and sometimes it sucks to be right.  Yet another issue to add to his ever growing list :(  But at least now we have a dx and can use that to help him.  We are now in the process of finding a ENT that accepts his insurance and getting him seen to see what we can do for him.  He at least is sleeping through the night for me still, but he is very tired during the day.  Around 11am and 6pm are his really bad times, right before his afternoon nap and bed time.  Most nights its hard to keep him awake till 8pm and if I put him to bed any earlier he wakes up way to early.  Crossing my fingers that we can come up with a plan in a timely manner to get him help with sleeping more soundly.

He has also been very moody.  Out of the blue he starts crying and can't explain to me what he wants.  He had a huge meltdown yesterday in the car for no reason.  We went out to eat last night and stupid me planned it too close to that 6pm time and he was just done.  He is also having major mommy issues.  If I leave the room without him horrible crying fit.    I kinda half think its just normal, we went to a new church on Sunday and left him in the nursery....and I think he is getting back at me for leaving him.  But even if Tim is with him....he just wants me.

We are getting to the tail end of the effectiveness for his Botox.  He is starting to cross his legs alot more when walking and just more stiff overall.  I really think he is better then before we started, we got the chance to strengthen some of those muscles before the tone came back.  In three weeks we go back in to see his physitrist and orthopedic surgeon and hopefully get another round of Botox and casting.

As for Tristen he started up soccer.  Had his first game this past Saturday and scored his first goal.  After about 15 mins though he was just done.  He had a major fit and I couldn't get him to play again.  Tonight we have a make up game and I really hope that he will play.  He told me he doesn't like soccer....I just think that he doesn't like when the other kids take the ball from him.  He needs to toughen up a bit ;)  And I need to find a way to make it fun again.  Stupid me volunteered to coach and its really hard to keep the attention of 4 year olds.  But now I have one game under my belt and know how to help them out.  

Now we are off to build and gather items to make our fairy garden. :)


Love these guys!


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