More Botox

We had two appointments on Thursday and from both doctors stand points we are going to go through with another round of Botox.  This time we will be adding in doing his calf muscle along with his hamstrings and abductors.  We are also going to be getting a swash brace, it will help him keep his feet from crossing when he walks as the Botox wears off or takes time to take effect. He will also be getting new ankle braces and evals for new walkers/gait trainers. 

Today we went and saw the ENT and they can't do anything for Phoenix's sleep apnea.  It turns out that his "mild" obstructive sleep apnea is 50% central apnea which means that his brain is forgetting to tell him to breath while sleeping.  Wonderful so now we need to see a pediatric pulmnologist to see what our options are for a child so young having sleep apnea.  Apparently he is pretty young to even be diagnosed with it, so it sounds like there is not much to do about it. 

My child just will not be able to sleep, along with him not being able to walk, sit, or talk....anything else?!  Along with all of this, we find out today that his pediatrician will be dropping his insurance so the head nurse tells me...."just switch to this company" just like that.  Um lady you are not the ONLY doctor my son has there is a whole slew of specialists and equipment vendors we have to consider.  So after spending about 2 hours checking out our options we found a provider that keeps all his specialists in Hershey and all we had to do was find another pediatrician and cross our fingers on the equipment vendors.  You know while I'm glad that our state offers my children health insurance I'm just getting fed up with the way the insurance companies decide not to pay the doctors there-fore the doctors having to drop companies within months of getting them leaving children like Phoenix who really need these services high and dry.  I just want my little boy to get a break.

And onto Tristen, the poor kid has had a 103 fever since Wednesday night.  I don't think in the last 5 days he has played with a single toy besides the tv remote.  Today it seems like the fever is going down and morphing into a good head cold.  He's had to miss so much this last week from being sick, I just hope he can get better before his last soccer game on Saturday.

So there you have the low down from a very sleep deprived exhausted mama.  I know things will work out they always do...but right now I'd just like to go sleep in a quiet dark hole for a few months and wake up when things are better.