And be not conformed to this world: but be ye transformed by the renewing of your mind, that ye may prove what is that good, and acceptable, and perfect, will of God. ~Romans 12:2~







Sunday, February 26, 2012

More Physical Therapy.

I called our early intervention coordinator two weeks ago to see if we could get more PT through her program.  After our PT wrote an awesome note and with the help of our super awesome support coordinator we are approved for 8 weeks of home based therapy with his PT he has now.  I couldn't be happier!  After the 8 weeks is up we will re-evaluate and go from there.  That would put us up till his next Botox treatment.  The goal is to get into one of the pediatric rehab places that have equipment for Phoenix to use, we are on two waiting lists so hoping that something will open up.  Even if it doesn't our PT gave me a ton of new exercises and stretches that I know I can do on my own.  Phoenix is tolerating the more PT he screams less when I stretch him, and really doesn't mind the casts.  For myself though I can't wait till the casts come off.  He has issues sleeping, I don't think his muscles can relax and he just tosses and turns all night.  He also weighs what feels like another 10 pounds with the massive things on his legs.  Giving his mommy a back ache since I can't be out of his sight for more then a second.  He is also scheduled for a sleep study at the end of March.  Really hoping it will shed some light on his sleeping issues....and just hoping that he will be able to sleep with all the wires they have to put on him.

Signed Tristen up for soccer this spring.  Super excited to have something all just for him.  Everyday he tells me he can't wait to play. :)

So thats about it, we are all getting over wonderful colds.  Keeping busy with all of Phoenix's therapies and just gearing up for spring!

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